Kyle Moody was born to Ryan and Elicia in Houston, Texas on June 18, 2007 with
bilateral clubfeet. Clubfeet is a birth defect that affects about 1 in
every 1000 babies, and is more common among families with a genetic history
of the problem. While we haven't found any history of it in our
family (update: we've recently found cousins on both sides who had the
deformity), we were lucky to have it diagnosed as early as the 21st week of
pregnancy. I say this is lucky because we had plenty of time to
prepare for his treatment. For the unlucky parents who are surprised
by this problem at their child's birth, it can be frightening.
Fortunately, clubfeet is
completely fixable and he will look and play like a normal child.
We started Kyle's treatment of serial castings on his
fourth day of life. We found a doctor at the Fondren Orthopedic Center
in Houston who follows the Ponseti Method of non-surgical correction.
He will have up to 6 sets of casts, changed weekly, with the last one
staying on for three weeks to allow for complete healing after a small
incision to his Achilles tendon. When the last casts come off, his
feet will look normal, though there will be some overcorrection. He
will then have to wear a special brace made up of shoes secured to a bar at
a 70degree angle outward. This brace (called a Dennis Browne Bar, or
Mitchell Brace) had to be worn 23 hours per day for three months to
hold the correction. After that, he will wear the brace when he sleeps
until he is 3 years old. All said, not so terrible a price for him to
walk and run like a normal child, and likely have no pain associated with
his feet when he grows up (unlike surgeries which often result in chronic
foot/ankle problems later in life).
We've done our best to
document Kyle's transition from really screwed up feet to cute
and outward-pointing little piggies. Here are the pictures we've taken along
the way.
This is what his feet looked like at
birth. He could kick his bottom with the soles of his feet (and did,
during diaper changes!).
June 22, 2007 First Casting (4 days
old!)
June 29, 2007 Second Casting
We were told by Dr. Epps in Houston to soak off the first
casts as close to the appointment time as possible, so the morning of, we
broke out the tub. But his umbilical stump was still there, so we got
imaginative!
July 10, 2007 Third Casting
July 17, 2007 Fourth Casting
July 24, 2007 Fifth Casting
August 1, 2007 Tenotomy and Sixth Casting
August 22, 2007 End Result and New Shoes
The casts were removed three weeks after the tenotomy and
his feet looked great! We were surprised to find out, though, that the
shoes/brace he would have to wear for the next three to four months take a
day to make, so his feet were free for about 30 hours. Dr. Epps
prefers this special brace that's built specifically for his feet, so on the
22nd they took a casting of his feet and calves and we went back on the 23rd
to get it. He fit in it perfectly, and didn't even fuss when the
orthotist put it on him at the full 70 degree outward abduction (10
degree dorsiflexion). After a very fussy first day of wearing the
brace, though, we turned it down a notch to about 60 degrees out and he was
much more comfortable. The next day, though, we worried about losing
any of the progress we'd made, so we put it back at 70 and he's been happy
with it since.
His first night in the brace he pulled a Houdini and
unscrewed himself from the bar! He didn't sleep well that night or the
next day, but his second night he slept 8 hours for the first time in weeks.
He's a good boy handling all this craziness very well. It's perfect
training for his snowboarding/skateboarding career!
After 6 weeks in the above brace, he outgrew it, and we
got a different kind of brace actually called the "Ponseti Brace." He
went from snowboard to Birkenstocks... oh well, they give him much more room
to grow and are more self-adjustable on the width as well.
At 14 weeks, we still had him wearing the Ponseti brace
full time, but after a 15 week checkup, he'll only have to wear it at night
and we can tickle his toesies to our hearts' content all day!
Here is a video of him crawling. He is almost 1,
but he started crawling when he was 7 months old, with and without the brace
on.
At 10 months old, he's still doing great and he can
crawl, pull to a stand, and even tries to walk with his brace on at bedtime.
Without his brace, he loves to "drive" his push-walker all over inside and
out - pretty early walking for a big boy!
Now that he's 15 months and has been walking and running
for a while, he's still doing great! His toes still point quite a bit
outward, but the doctor isn't concerned. Better to overcorrect than to
have a recurrence and start back at square one!
At 16 months, he still prefers to sleep on his side,
which twists one of his feet almost backwards, but he doesn't seem to mind.
Sleeps great for 10 hours nearly every night.
At 22 months he had another checkup. He had some
continuing trouble with "external hip rotation" something which made him
sort of waddle when he walked or ran. It was hard to tell if it bothered
Kyle, but it's something that was supposed to clear itself up after only a
month or two of walking. At 20 months (8 full months of walking), we decided
to take some action against it by turning the brace inward so instead of a
70 degree outward angle of his feet, we put it down to 35, almost normal
position. We brought him back to Dr. Epps two months later to make
sure there was no regression. Apparently, Kyle has very flexible ligaments
and tendons and he hasn't lost any of his ankle flexibility, so all was
well. We're keeping the brace at 35 degrees and continuing to monitor
his flexibility and unbraced position. He is walking significantly
better without the waddle and he's a faster runner now. The more active he
is on his feet, the better his chances of preventing a regression.
For Reference, here is the starting point and each
successive cast's results. Quite a difference each week makes!
After 14+ weeks in the brace, still looking good with all
his flexibility!
At 8 months old he was pulling up and cruising.
Still pretty wrinkled around the ankles, but no one ever notices.
Great flexibility, too.
At 22 months, walking and running as normal as can be.